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That question could be answered
many different ways by any number of people. For the Majority in our
country it means having more difficulty doing things most of us take for granted
or not being able to do them at all. This is a very difficult thing to
accept when it happens to a person who has never been disabled. It
can be especially difficult for those who want to work and must compete with
more able bodied, healthier persons in a job market.
Taking into consideration that a
Disabled Person's health can be unpredictable, they often loose jobs when
they can't get in to work due to a health relapse or can not meet the demands
made by corporate protocol.
For this reason, some dIsabled
persons find that working for themselves relieves a lot of this anxiety.
Being your own boss means you can delegate work to those who are healthier or
doing the work yourself and resting as needed. It can also mean having only a
handful of places to pick from that are willing to accept and work with
your needs. Some employers feel justified in offering lower wages when they must
make exceptions. I have found that the Internet is probably one of the
biggest and best resources for a disabled person. Where else can you
do so many things in life with just the click of a mouse. Some new technology
does not even require that. For a person who is able to do next to
nothing, the Internet and computers make it possible to do a multitude of
things. Imagination and the willingness to learn how to utilize the
benefits of the Internet and the use of computers is probably the best thing
ever to happen for a disabled person wanting more career options.
Art has been found to be a form of
therapy for some, especially for those who have been traumatized in any way
physically or emotionally. It is also something that you can set aside
and come back to later when the mood, desire, and ability is there.
There is nothing worse than
feeling you have no control over your life, your body, your ability to be
employed, and the ability to care for yourself or even your family. Nobody
wants to feel like that.
What about Social Security or SSD
Income for people who are Disabled ? Yes, this is available and thank god it is.
Not every Disabled Person wants to except it or stay on it for life and
not every Disabled Person has the ability to survive with out it.
This is an entirely individual thing for each person and just because there are
Disabled Artists and persons out there who are trying to work and create a job
and or income for themselves does not mean that every person will be able
to accomplish this and some could seriously endanger their health to do so.
There is also the consideration of how much Medical Treatment a Disabled Person
may need. If their Medical needs are severe, chronic, and expensive, it is
not always in their best interest to pursue something that could make them
sicker or make them loose their Medical Insurance. Again this is something
each person must decide for themselves. Some people may be fully aware of
the risks and decide to work and create their Art anyway as they may feel living
is dying and dying is living.
For a young person and I mean
somebody who has not reached retirement age, being disabled before their time
can be especially difficult. If they have no home, no family and few
resources like many of us do, you may see them living on the streets. When
they finally do get their SSD, a lot of them find themselves in a hopeless
situation trying to decide whether that small amount of money they get is going
to pay the rent, the utilities, buy food, clothing or fix the car and forget
about trying to do all those things because if you are alone you will not have
enough.
We couldn't possibly ask our
government to do more when they have been so kind and generous to seniors, and
the disabled thus far. There is only so much money to go around and do things
with and I imagine they have checked their government checkbooks and said "This
is the Best we can do" . Sometimes we all just have to do our part to help
and figure out additional solutions to our country's problems. This is a
start . Let's see what happens .
Nobody wants to live in oppression
or live a demeaning life where life is a shut off notice and beans and rice or
macaroni and cheese is
the norm for the rest of your life. For the folks who are selling their
Art on this site, you know they may have sacrificed everything they have to get to
this point. This is their dream. This is their goal. This is
their hope and their future. This is their dignity and respect for
themselves and you. It is with great honor that I promote and share with
you the Art and Artists of
Disabled Artists
Network.
If you are working with Disabled Persons for the first time there are
important things you should be aware of . These things have never really
been discussed and organized in a forum before and I am sure I don't have them
all but I will try my best to explain for those who are interested in learning
and educating themselves in this area for the benefit of being able to do more
business with Disabled Persons. The following are only my opinion from what I
have noticed and should not be perceived as anything more than that.
Because no one has ever created a standard and because so many potential
employers are afraid of being sued and also are afraid of not financially being
able to meet the complex and diverse needs of Disabled Persons I thought
it might be a good Idea to start somewhere and encourage people to set a
standard. By doing this, it will open more doors of employment opportunity
for those who are disabled and help potential employers understand more fully
what they are dealing with . I hope more and more people will give input
on this Subject and start forming a standard.
1. Disabled Persons prefer to be treated just like everybody else
regardless of type of Disability. Every person on this earth has value.
2. The type of Disability a person has determines their work and
lifestyle. To best determine the greatest chances of success for working
with a Disabled Person first
determine the type of Disability. They are as follows;
A. Missing Body Part or Function for an otherwise healthy person and
sometimes in combination with an illness or disorder . A person with this
type of Disability may or may not want or need assistive Technological help. It
depends on the person and whether they have adapted to a lifestyle with or
without assistive Technology. The most common Idea people associate
Disability with is the Wheelchair. More and more buildings and public
places have wheelchair access. Someday this will be common. Other
examples are special glasses, TDY Telephone service for the Blind, Bionic or
artificial limbs, and on and on. As long as we have missing parts there is
a job and Intelligent Scientists and Medical Entrepreneurs out there creating
them. For those who aren't aware did you know the U.S. Census Bureau
reports that 20 Percent of our Population feels Disabled or has been diagnosed
with a Disability? I expect that number may grow as people are living
longer. Assistive Technology is probably the easiest Disability to work
with.
There are also Kind Humanitarians like
Heather Mills who has helped thousands
and thousands of Land Mine Victims get new limbs. As our society has matured and
become more compassionate and open minded it has brought to us Innovative New
Thinkers. For example this company may one day hold the World Model for
creating a Universal plan for Architecture that will accommodate any Disabled
Person. Find out more at
http://www.adaptenv.org To find out the latest news on
Technological assistance go to
http://www.businessweek.com/bwdaily/list/assist01.htm because these guys
have the absolute latest news on the hottest topics in Assistive Technology.
The articles are informative, passionate, and very worth wile. To see
what is available for purchase online now go to
http://www.enablemart.com and see
what might be out there that could make the difference between working and not
working. Writer
Stephen Hawking simplified it in one
simple sentence "I may have lost my ability to speak but I still have my mind ",
and for great intellectuals like Stephen we will always have the joy of what he
and other great minds bring to our world by use of Assistive
Technology.
B. Invisible Disability's. People with
Invisible Disabilities
most often get accused of Faking their Disability or constantly feel they
need to offer proof. Some of these more Invisible type of Disability's may
wax and wane and their are good days and bad days. The hard part is the
unpredictability. The best way to work with a person with an invisible
Disability is to stay in their limits and do the work on the good days.
For example a person with
Environmental Illness improves their health by abstaining from toxic
substances and environments. They may slowly improve over time and eventually
tolerate more but could also relapse if another toxic exposure occurs.
When their environment is controlled they may be able to do some work on their good days.
Assistive Technology helps a lot in this area because when you are cut off from
your world you may find that your special radiation screened computer is your
only link to society and any possible work. Especially since Isolation
is a major factor in improving health.
Fibromyalgia
is another
example of Invisible Disability. People with Fibromyalgia have to very
careful to never do repetitious work of any kind nor be exposed to Allergens as
they aggravate this condition. Fibromyalgia can be extremely
painful, tiring, and more. Again the key to working with this type
of Disability is allowing the person flexibility in Environment, Work Patterns
and schedules. The rule is "Do the work on the good days" and have help
for the bad days. Working within the limits means that a person with a bad back,
feet, or an arthritic condition should not do things that hurt or exaberate their problem. You certainly wouldn't put them to work lifting boxes
and how many places have you see where employees are made to stand in one spot
all day? I've see young healthy people who went home exhausted from that.
How about a person who has a sleep disorder? They would get fired from
most day jobs for chronic lateness but give them something to do when they are
feeling their most optimal and you'd be surprised at what they can do.
Folks with a sleep disorder especially narcolepsy should not be in situations
that would endanger them should they suddenly fall asleep.
C.
Chronic poor
Health or
Autoimmune Disorders or a
Major Illness ,Disease, or Disorder
that may result in an early Death
or a drastically changed life. A person with Chronic poor health may be
able to do work during their good days. It can never be said for sure what they
may be doing on their good days as each person is unique but if they are
determined and badly want to work it would probably make the most sense to not
do things that are too taxing on their health. A person with this or these types
of Health Conditions would find it extremely difficult to find employers as
logically the first two things coming to an employers mind would be 1. How would
they ever cover the Medical Insurance and 2. Not much work could get done when a
person is sick more than is allowed in a work day or week. It is possible
though to work with a person in these situations though as long as the persons
understand and accept the limitations and conditions. For example on this
persons better energy or good days they just might write the best screenplay you
ever saw in your life or while they were resting they may have come up with a
plan for world peace. You never know, so be patient, be kind, be
understanding, be flexible. For those who are very very ill or may be dying each
day is a roll of the dice as to how and what they may feel like doing that day.
Giving Respect and Dignity to a person in this situation is more important than
expectations. Gentleness and the ability to be flexible and accepting the
ominous "No" when this person wants to stop working is the general rule of
thumb. Take nothing for granted and honor and respect anything that is
granted. A person in this situation should never be made to work but if
they want to and they want to have that option that is what this is about.
D.
Mental Illness,
Head Injury, or
Learning Disability's . Working with people with Mental Illness can be
challenging or it can be easy. It depends on the type of Mental Illness
and whether the person functions well with or without Medication or Therapy.
What ever the case may be there is one simple rule and that is to simply be
Kind, Respectful, and don't ask a lot of personal questions unless this person
is comfortable with that. You never know what pain a person has been through in
life and an insensitive comment may trigger a painful memory for that person. It
is important to know though the type of Mental Illness in some situations and be
educated about this so that a good working relationship is established along
with support and resources. For example I have noticed some people with
A.D.H.D do great with Multi-Tasking and that People with
Dyslexia have an especially astute ability to do hands on or mechanical type
work as they work best by touch. Just pay attention and you will see the
wonderful abilities that some people have, that exceed or excel in specific
areas.
Overall learning to be patient, understanding, kind, flexible,
resourceful, and creative are really what is needed the most for working with
those who are Disabled. Once you have that down, everything else
should be much easier than you might expect. Shouldn't we all treat each
other that way anyways?
I hope you find these links useful and they help people to understand more
about Disability and realize how common it really is. Again, I can not speak for
others and I hope people will email in their point of view on these things.
Thank you.